So as many of our friends and family know we have been doing an in home therapy program with our boys Adriel and Mathias. Our therapy recently took a wrong turn, and Adriel has in a way pulled further back in him self . Despite mine and the In home nurses best efforts her bond with Adriel dissipated rapidly and caused him to pull back into him self. I am not sure what happened but unfortunetly there is nothing I can do about it now, I just have to move forward and try again. I knew there was a possibility of this, but it surprised me how quickly Adriel rejected someone who he had seemed to bond with quickly. This may complicate things in the program and it's gonna take alot of prayer and the Lords help in finding the right volunteers to come in and work with him.
Adriel not only lost his nurse but also lost his speech therapy services at childrens therapy unit. He refused to attend with the speech therapist or even allow her to play with him, so she had to put him back on the waiting list. Our insurance refused to pay for something where there was no marked progress. This is also a big loss seeing as how it took six months just to get him in and it was lost in under 2 months, though he doesn't go back on the big waiting list he does go back on the small one. Weekly reviews with the speech therapist will help us both gauge when he is ready to get back into it.
For me as a Mom this has been a hard thing to watch, it in alot of ways is almost like loosing him all over again and though he hasn't lost everything what he has are things that we worked for months to get.
Adriel has regressed in eye contact by 5 seconds ( though this doesn't seem like much for an autistic kid 5 seconds is a big loss) Adriel went from being interactive 75% of the time during play to under 15%. He has pulled back into his world, made no word progress and has began shutting out his Occupation Therapist, has shut out his Speech Therapist and refused his care aid. He has even pushed me as Mom out a little bit. It's a hard thing.
This problem became serious enough rapidly enough that the speech therapist highly recommended doing ABA therapy which for now I would prefer to avoid. You treat Autism as a behavioral issues not a social... It is not behavioral it is social and it's not a kid friendly approach. So for now I stand firm in my choice to do Son - Rise, and pray that we will find the right volunteers and nurses to help us and maybe not loose him further...
I won't stop fighting...
Love you Adriel!!!!!!!
Mom.
